Research map: Psychometric Evaluation of the Turkish Version of a Questionnaire to Measure the Quality of Life of Individuals with Profound Multiple Disabilities

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  1. Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: Report of the ISPOR Task Force for Translation and Cultural Adaptation · Diane J. Wild · 2005 · 5612 citations · Cited by this paper
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  13. Looking back, looking forward: Methodological challenges and future directions in research on persons with profound intellectual and multiple disabilities · Bea Maes · 2020 · 129 citations · Cited by this paper
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  15. Preliminary analysis of the psychometric properties of the Mood, Interest & Pleasure Questionnaire (MIPQ) for adults with severe and profound learning disabilities · Elaine Ross · 2003 · 113 citations · Cited by this paper
  16. Mothers’ Advocacy for Breaking Ideological and Structural Barriers During the COVID-19 Pandemic · 2026 · Related
  17. A study to define: profound and multiple learning disabilities (PMLD) · Gary Bellamy · 2010 · 97 citations · Cited by this paper
  18. People with Disabilities in War Contexts: A Scoping Review Using the ICF Model · 2025 · Related
  19. Identifying expressions of pleasure and displeasure by persons with profound and multiple disabilities · Katja Petry · 2006 · 92 citations · Cited by this paper
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  21. The Significance of a Product Moment rs · Jacob Cohen · 1977 · 79 citations · Cited by this paper
  22. Supporting Young Children With Multiple Disabilities · Eva Marie Horn · 2011 · 68 citations · Cited by this paper
  23. Conceptualisation and Measurement of Quality of Life Based on Schalock and Verdugo’s Model: A Cross-Disciplinary Review of the Literature · Nele Van Hecke · 2017 · 62 citations · Cited by this paper
  24. Quality of life of persons with profound intellectual and multiple disabilities: A narrative literature review of concepts, assessment methods and assessors · Appolonia M. Nieuwenhuijse · 2017 · 53 citations · Cited by this paper
  25. Psychometric evaluation of a questionnaire to measure the quality of life of people with profound multiple disabilities (QOL-PMD) · Katja Petry · 2009 · 52 citations · Cited by this paper
  26. The documentation of health problems in relation to prescribed medication in people with profound intellectual and multiple disabilities · D. C. Van Der Heide · 2008 · 50 citations · Cited by this paper
  27. Do You Know What I Feel? A First Step Towards a Physiological Measure of the Subjective Well‐Being of Persons With Profound Intellectual and Multiple Disabilities · Pieter Vos · 2010 · 47 citations · Cited by this paper
  28. Variables related to the quality of life of families that have a child with severe to profound intellectual disabilities: A systematic review · Nicole Luitwieler · 2021 · 31 citations · Cited by this paper
  29. Investigating the relationship between observed mood and emotions in people with severe and profound intellectual disabilities · Pieter Vos · 2013 · 27 citations · Cited by this paper
  30. The Shaping of Sexuality in Children with Disabilities: A Q Methodological Study · Judith McKenzie · 2011 · 24 citations · Cited by this paper
  31. Reliability and Validity of The Cerebral Palsy Quality of Life Questionnaire in The Turkish Population · Songül Atasavun Uysal · 2016 · 23 citations · Cited by this paper
  32. The relationship between motor abilities and quality of life in children with severe multiple disabilities · Sonja M. Mensch · 2018 · 20 citations · Cited by this paper
  33. A systematic review on quality of life assessment in adults with cerebral palsy: Challenging issues and a call for research · Ana Cláudia Alves-Nogueira · 2019 · 19 citations · Cited by this paper
  34. Psychometric Properties of the Turkish Version of the World Health Organization Quality of Life Instrument for People with Intellectual and Physical Disabilities (WHOQOL-DIS-TR) · Erhan Eser · 2017 · 10 citations · Cited by this paper
  35. Understanding quality of life in people with complex and multiple communicative disabilities: A narrative overview of the empirical research literature · Nina Wolters-Leermakers · 2022 · 10 citations · Cited by this paper
  36. Parent perspectives on the assessment of quality of life of their children with profound intellectual and multiple disabilities in the Netherlands · Appolonia M. Nieuwenhuijse · 2023 · 10 citations · Cited by this paper
  37. Development and initial validation of the quality of life questionnaire for persons with polyhandicap (PolyQoL) · Ilyes Hamouda · 2022 · 9 citations · Cited by this paper
  38. Person-Centred Care for People with Profound Intellectual and Multiple Disabilities: A Rapid Review · Sanne Nieuwenhuis · 2025 · 5 citations · Cited by this paper
  39. Validation of the Pediatric Quality of Life Inventory 3.0 Cerebral Palsy Module (Parent Form) for use in Türkiye · Şehim Kutlay · 2022 · 4 citations · Cited by this paper

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