Research map: The Patient-reported Genetic testing Utility InDEx (P-GUIDE): A novel measure of personal utility

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  1. Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives · Li‐tze Hu · 1999 · 108868 citations · Cited by this paper
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  19. COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study · Caroline Barbara Terwee · 2018 · 2427 citations · Cited by this paper
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  21. Instrument review: Getting the most from a panel of experts · Linda Lindsey Davis · 1992 · 2358 citations · Cited by this paper
  22. Implementing genomic medicine in the clinic: the future is here · Teri A. Manolio · 2013 · 583 citations · Cited by this paper
  23. Personal utility in genomic testing: a systematic literature review · Jennefer N. Kohler · 2017 · 185 citations · Cited by this paper
  24. The Promise and Challenges of Next-Generation Genome Sequencing for Clinical Care · Katherine Johansen Taber · 2013 · 184 citations · Cited by this paper
  25. Challenges in Health State Valuation in Paediatric Economic Evaluation · Wendy J. Ungar · 2011 · 158 citations · Cited by this paper
  26. Personal utility in genomic testing: is there such a thing? · Eline Maria Bunnik · 2014 · 117 citations · Cited by this paper
  27. Defining personal utility in genomics: A Delphi study · Jennefer N. Kohler · 2017 · 106 citations · Cited by this paper
  28. The Feelings About genomiC Testing Results (FACToR) Questionnaire: Development and Preliminary Validation · Meng Li · 2018 · 85 citations · Cited by this paper
  29. Developing a short-form of the Genetic Counselling Outcome Scale: The Genomics Outcome Scale · Peter E. Grant · 2018 · 79 citations · Cited by this paper
  30. Patient reported outcomes and patient empowerment in clinical genetics services · Marion McAllister · 2014 · 67 citations · Cited by this paper
  31. Measuring genetic knowledge: a brief survey instrument for adolescents and adults · Sara M. Fitzgerald‐Butt · 2015 · 59 citations · Cited by this paper
  32. A randomized controlled trial of disclosing genetic risk information for Alzheimer disease via telephone · Kurt Derek Christensen · 2017 · 55 citations · Cited by this paper
  33. Parents’ perceptions of personal utility of exome sequencing results · Lonna Mollison · 2019 · 54 citations · Cited by this paper
  34. Improving the efficiency and relevance of evidence-based recommendations in the era of whole-genome sequencing: an EGAPP methods update · David Leroy Veenstra · 2012 · 51 citations · Cited by this paper
  35. Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development · Hadley Stevens Smith · 2021 · 46 citations · Cited by this paper
  36. The PrU: Development and validation of a measure to assess personal utility of genomic results · Erin Turbitt · 2022 · 44 citations · Cited by this paper
  37. The development of the Clinician-reported Genetic testing Utility InDEx (C-GUIDE): a novel strategy for measuring the clinical utility of genetic testing · Robin Z. Hayeems · 2019 · 39 citations · Cited by this paper
  38. Current Challenges and Future Research in Measuring Preferences for Pediatric Health Outcomes · Lisa A. Prosser · 2009 · 35 citations · Cited by this paper
  39. Evidence review and considerations for use of first line genome sequencing to diagnose rare genetic disorders · Kristen M. Wigby · 2024 · 34 citations · Cited by this paper

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