“It didn’t feel like anything unusual because we had already been through so much”: Disability-Related Research Experiences of Families with Children Enrolled in the Undiagnosed Diseases Network

Genetics in Medicine · Published 2026-07-01 · DOI 10.1016/j.gim.2026.102663

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Authors (100)

Kevin T. Mintz, Elisa N. Altamirano, Meghan C. Halley, Krysta S. Barton, Mildred K. Cho, Jonathan A. Bernstein, Jennefer N. Carter, Jose Abdenur, Maria T. Acosta, David R. Adams, Ben Afzali, Eric Allenspach, Raquel L. Alvarez, Ashley Andrews, Euan A. Ashley, Sanaz Attaripour, Paul Auwaerter, Suha Bachir, Carlos A. Bacino, Guney Bademci, Dustin Baldridge, Erin E. Baldwin, Elsa Balton, Manisha Balwani, Michael Bamshad, Mafalda Barbosa, Deborah Barbouth, Rebekah Barrick, Donald Basel, Lisa Bastarache, Pinar Bayrak-Toydemir, Taylor Beagle, Alan H. Beggs, Megan Bell, Hugo J. Bellen, Paul Berger, Jonathan A. Bernstein, Gerard T. Berry, Louise Bier, Stephanie Bivona, Reaford Blackburn, Lauren Blieden, Elizabeth Blue, Devon Bonner, Brett Bordini, Nicholas Borja, Lorenzo Botto, Steven Boyden, Lauren C. Briere, Elizabeth A. Burke, Lindsay C. Burrage, Francisco Bustos, Manish J. Butte, Russell Butterfield, Peter Byers, William E. Byrd, Kaitlin Callaway, John Carey, George Carvalho, Thomas Cassini, Chun-Hung Chan, Richard Chang, Yongen Chang, Sirisak Chanprasert, Elizabeth C. Chao, Hsiao-Tuan Chao, David Chiang, Ivan Chinn, Wendy Chung, Terra R. Coakley, Joy D. Cogan, F. Sessions Cole, Erin Conboy, Rosario I. Corona, William J. Craigen, Andrew B. Crouse, Charlotte Cunningham-Rundles, Precilla D'Souza, Hongzheng Dai, Kahlen Darr, Erica Davis, Joie Davis, Margaret Delgado, Patricia Dickson, Katrina Dipple, Naghmeh Dorrani, Abdul Elkadri, Christine M. Eng, Cecilia Esteves, Rachel Evard, Kimberly Ezell, Layal F. Abi Farraj, Paul G. Fisher, Brent L. Fogel, Aleksandra Foksinska, Jiayu Fu, William A. Gahl, Eric Gamazon, Rebecca Ganetzky, Eric Gayle

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Publication details

Year
2026

Citation

Mintz, K., Altamirano, E., Halley, M., et al. (2026). “It didn’t feel like anything unusual because we had already been through so much”: Disability-Related Research Experiences of Families with Children Enrolled in the Undiagnosed Diseases Network. Genetics in Medicine. https://doi.org/10.1016/j.gim.2026.102663

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