Launching a multi-level data strategy for rare eye diseases: a methodological case study from national to European scale

Orphanet Journal of Rare Diseases · Published 2026-07-21 · DOI 10.1186/s13023-026-04505-0

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Authors (6)

Camille Beluffi-Marin, Marilyne Oswald, Isabella Anna Vacchi, David Keegan, Bart Peter Leroy, Hélène Dollfus

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Publication details

Year

2026

Citation

Beluffi-Marin, C., Oswald, M., Vacchi, I., et al. (2026). Launching a multi-level data strategy for rare eye diseases: a methodological case study from national to European scale. Orphanet Journal of Rare Diseases. https://doi.org/10.1186/s13023-026-04505-0

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