Research map: Receiving information and determining research priorities for Lennox-Gastaut syndrome: A community-focused study of caregivers’ experiences and preferences
Back to the article
Papers in this map
Sample sizes for saturation in qualitative research: A systematic review of empirical tests
· Monique M. Hennink · 2021 · 6231 citations · Cited by this paper
Parental miscarried helping, self-efficacy, and treatment adherence among adolescents and young adults with epilepsy: A mediation model
· 2026 · Related
Proposal for Revised Classification of Epilepsies and Epileptic Syndromes
· 1989 · 5378 citations · Cited by this paper
Variant-specific response of KCNT1 gain-of-function mutations to quinidine
· 2026 · Related
Transition from child-centered to adult health-care systems for adolescents with chronic conditions
· Robert W. Blum · 1993 · 1553 citations · Cited by this paper
Phenotype and genotype of people with epilepsy and GABAA receptor gene variants: Genetic and clinical characterization of six children in China
· 2026 · Related
What Influences Saturation? Estimating Sample Sizes in Focus Group Research
· Monique M. Hennink · 2019 · 1198 citations · Cited by this paper
Prevalence of epilepsy in Portugal: An epidemiologic population-based study (EPIPORT)
· 2026 · Related
International League Against Epilepsy classification and definition of epilepsy syndromes with onset in childhood: Position paper by the ILAE Task Force on Nosology and Definitions
· Nicola Specchio · 2022 · 975 citations · Cited by this paper
Psychiatric symptoms and quality of life in Saudi individuals with epilepsy receiving perampanel: A cross-sectional comparative study
· 2026 · Related
Qualitative research and content validity: developing best practices based on science and experience
· Meryl I. Brod · 2009 · 972 citations · Cited by this paper
MRI-based machine learning model to distinguish hippocampal sclerosis (HS) ILAE type 1 and no HS gliosis only in medial temporal lobe epilepsy
· 2026 · Related
Lennox-Gastaut syndrome: a consensus approach on diagnosis, assessment, management, and trial methodology
· Alexis A. Arzimanoglou · 2008 · 492 citations · Cited by this paper
Is temporal lobe epilepsy a progressive disease? Insights from a 5-HT1A receptor partial volume correction study
· 2026 · Related
Efficacy of Felbamate in Childhood Epileptic Encephalopathy (Lennox-Gastaut Syndrome)
· The Felbamate Study Group in Lennox-Gastaut Syndrome · 1993 · 411 citations · Cited by this paper
Long-term risk of major adverse cardiovascular events in patients with epilepsy: Roles of childhood onset and antiseizure medications
· 2026 · Related
Rufinamide for generalized seizures associated with Lennox–Gastaut syndrome
· Tracy A. Glauser · 2008 · 356 citations · Cited by this paper
The role of DHH motifs in PRUNE1 gene on ion channels: A new insight into epilepsy pathogenesis
· 2026 · Related
Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support
· Matilda Anderson · 2013 · 354 citations · Cited by this paper
Repetitive transcranial magnetic stimulation for epilepsy: Efficacy and safety
· 2026 · Related
Definition and natural history of Lennox‐Gastaut syndrome
· PETER R. CAMFIELD · 2011 · 241 citations · Cited by this paper
Lennox-Gastaut syndrome: a comprehensive review
· Ali A. Asadi‐Pooya · 2017 · 214 citations · Cited by this paper
Information needs of physicians regarding the diagnosis of rare diseases: a questionnaire-based study in Belgium
· Liese Vandeborne · 2019 · 188 citations · Cited by this paper
Artificial Intelligence (AI) in Rare Diseases: Is the Future Brighter?
· Sandra Brasil · 2019 · 162 citations · Cited by this paper
Prevalence and Descriptive Epidemiology of Lennox‐Gastaut Syndrome Among Atlanta Children
· Edwin Trevathan · 1997 · 154 citations · Cited by this paper
Comparison of Number and Geographic Distribution of Pediatric Subspecialists and Patient Proximity to Specialized Care in the US Between 2003 and 2019
· Adam L. Turner · 2020 · 143 citations · Cited by this paper
Case Management in Primary Care for Frequent Users of Health Care Services With Chronic Diseases: A Qualitative Study of Patient and Family Experience
· Catherine Hudon · 2015 · 140 citations · Cited by this paper
Diagnostic needs for rare diseases and shared prediagnostic phenomena: Results of a German-wide expert Delphi survey
· Susanne Blöß · 2017 · 135 citations · Cited by this paper
Are We There Yet? Distance to Care and Relative Supply Among Pediatric Medical Subspecialties
· Michelle L. Mayer · 2006 · 128 citations · Cited by this paper
Lennox-Gastaut Syndrome
· Patricia K. Crumrine · 2002 · 126 citations · Cited by this paper
Anticoagulant Patient Information Material Is Written at High Readability Levels
· Carlos A. Estrada · 2000 · 122 citations · Cited by this paper
Education and information needs for physicians about rare diseases in Spain
· Enrique Ramalle Gómara · 2020 · 122 citations · Cited by this paper
The Suitability of Written Education Materials for Stroke Survivors and Their Carers
· Sally Eames · 2003 · 111 citations · Cited by this paper
Long‐Term Seizure Outcome in 74 Patients with Lennox–Gastaut Syndrome: Effects of Incorporating MRI Head Imaging in Defining the Cryptogenic Subgroup
· Ian L. Goldsmith · 2000 · 107 citations · Cited by this paper
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases
· Anna Visibelli · 2023 · 106 citations · Cited by this paper
Strategies for transitioning to adult care for youth with Lennox‐Gastaut syndrome and related disorders
· PETER R. CAMFIELD · 2011 · 96 citations · Cited by this paper
Community‐Based Study of Lennox‐Gastaut Syndrome
· Hannu J. Heiskala · 1997 · 92 citations · Cited by this paper
Are rare diseases overlooked by medical education? Awareness of rare diseases among physicians in Poland: an explanatory study
· Dariusz Walkowiak · 2021 · 91 citations · Cited by this paper
Development and Implementation of an Adolescent Epilepsy Transition Clinic
· Laura Jurasek · 2010 · 89 citations · Cited by this paper
Source: OpenAlex (CC0)