Research map: Aligning Words With What Matters: Evaluation of a Nationwide Sample of Pediatric Kidney Transplant Educational Materials

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  1. Development of the Patient Education Materials Assessment Tool (PEMAT): A new measure of understandability and actionability for print and audiovisual patient information · Sarah J. Shoemaker · 2014 · 1367 citations · Cited by this paper
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  13. Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology—Children and Adolescents (SONG-KIDS) consensus workshops · Camilla S. Hanson · 2020 · 101 citations · Cited by this paper
  14. Beyond Survival: Additional Considerations for Sequential HeartMate 3 Support and Heart Transplantation in Adolescents With Dilated Cardiomyopathy · 2026 · Related
  15. Child and Parental Perspectives on Communication and Decision Making in Pediatric CKD: A Focus Group Study · Talia Gutman · 2018 · 93 citations · Cited by this paper
  16. Gut Microbiome‐Immune Interactions During Pediatric Hematopoietic Cell Transplantation: From Conditioning to GvHD Prevention · 2026 · Related
  17. Self-Determination as a Psychological and Positive Youth Development Construct · Eadaoin K. P. Hui · 2012 · 92 citations · Cited by this paper
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  21. Identifying Important Outcomes for Young People With CKD and Their Caregivers: A Nominal Group Technique Study · Camilla S. Hanson · 2019 · 72 citations · Cited by this paper
  22. Long-term effects of paediatric kidney transplantation · Christer Holmberg · 2015 · 58 citations · Cited by this paper
  23. Patient Education for Kidney Failure Treatment: A Mixed-Methods Study · Susan Koch‐Weser · 2021 · 45 citations · Cited by this paper
  24. Exploring the Information Needs of Adolescents and Their Parents Throughout the Kidney Transplant Continuum · Moira Korus · 2011 · 39 citations · Cited by this paper
  25. Patient- and parent proxy-reported outcome measures for life participation in children with chronic kidney disease: a systematic review · Jasmijn Kerklaan · 2020 · 26 citations · Cited by this paper
  26. Advance care planning in adolescents with cystic fibrosis: A quality improvement project · Traci M. Kazmerski · 2016 · 25 citations · Cited by this paper
  27. Engagement of Families in the Care of Hospitalized Pediatric Patients: A Scoping Review · Teresa A. Jerofke‐Owen · 2021 · 25 citations · Cited by this paper
  28. Adding Life to Their Years: The Current State of Pediatric Palliative Care in CKD · Taylor R. House · 2021 · 24 citations · Cited by this paper
  29. Post-Traumatic Stress Disorder and Post-Traumatic Growth following Kidney Transplantation · Rebekah P. Nash · 2022 · 23 citations · Cited by this paper
  30. Asthma: In Plain Language · Rima E. Rudd · 2004 · 19 citations · Cited by this paper
  31. Adolescent and Young Adult Initiated Discussions of Advance Care Planning: Family Member, Friend and Health Care Provider Perspectives · Sima Zadeh Bedoya · 2022 · 16 citations · Cited by this paper
  32. Qualitative Analysis of the Psychosocial Adaptation Process in Children with Chronic Kidney Disease: Toward Effective Support During Transition from Childhood to Adulthood · Haruka Aoto · 2018 · 13 citations · Cited by this paper
  33. Palliative Care Training in Pediatric Nephrology Fellowship: A Cross-Sectional Survey · Taylor R. House · 2023 · 13 citations · Cited by this paper
  34. Assessing the Readability of Online English and Spanish Language Patient Education Resources Provided by the American Society of Plastic Surgeons, American Society of Aesthetic Plastic Surgeons, and American Society of Reconstructive Microsurgeons · Sairandri Sathyanarayanan · 2024 · 8 citations · Cited by this paper
  35. Building Partnerships to Improve Health Outcomes: Pediatric Patient and Family Engagement in Nephrology Practice · Taylor R. House · 2024 · 7 citations · Cited by this paper
  36. A scoping review of pediatric transplant education · Ashley Burghall · 2023 · 6 citations · Cited by this paper
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  38. Content and readability of patient educational materials about neuromodulation for childhood movement disorders · Jamie M. Barnacoat · 2024 · 4 citations · Cited by this paper
  39. Evaluation of psychosocial functioning in the acute treatment term of major depressive disorder: A 16-week multi-centered follow-up study · Neslihan Altunsoy · 2021 · 2 citations · Cited by this paper

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