Research map: Caregiver communication and psychosocial outcomes among adolescents and young adults with sickle cell disease

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  1. The Patient-Reported Outcomes Measurement Information System (PROMIS) · David F Cella · 2007 · 3187 citations · Cited by this paper
  2. Family sources of weight teasing and associations with adolescents’ unhealthy eating behaviors, weight bias internalization, and body appreciation · 2026 · Related
  3. Measuring the Transition Readiness of Youth with Special Healthcare Needs: Validation of the TRAQ—Transition Readiness Assessment Questionnaire · Gregory S. Sawicki · 2009 · 599 citations · Cited by this paper
  4. “Being a light at the end of the tunnel”: Peer mentor experiences on supporting adolescents with inflammatory bowel disease · 2026 · Related
  5. RECASTing racial stress and trauma: Theorizing the healing potential of racial socialization in families. · Riana Elyse Anderson · 2019 · 450 citations · Cited by this paper
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  7. A social‐ecological model of readiness for transition to adult‐oriented care for adolescents and young adults with chronic health conditions · Lisa A. Schwartz · 2011 · 405 citations · Cited by this paper
  8. Predictive utility and cut point of the Physical Activity Questionnaire—Children for differentiating youth meeting moderate to vigorous physical activity recommendations using accelerometry · 2025 · Related
  9. The number of people with sickle‐cell disease in the United States: national and state estimates · David C. Brousseau · 2009 · 392 citations · Cited by this paper
  10. Parent and child factors that affect unintentional injury in late childhood · 2025 · Related
  11. Family communication between children and their parents about inherited genetic conditions: a meta-synthesis of the research · Alison M Metcalfe · 2008 · 155 citations · Cited by this paper
  12. Association between youth constipation, emotional/behavioral symptoms, and family quality of life · 2025 · Related
  13. Health-Related Stigma in Young Adults With Sickle Cell Disease · Coretta Melissa Jenerette · 2010 · 151 citations · Cited by this paper
  14. Sleep in adolescents with or at risk for type 2 diabetes: perspectives from adolescents and parents · 2026 · Related
  15. Stakeholder Validation of a Model of Readiness for Transition to Adult Care · Lisa A. Schwartz · 2013 · 148 citations · Cited by this paper
  16. Subgroups of pre-adolescents with type 1 diabetes based on profiles of resilience-supporting resources and risk factors · 2026 · Related
  17. EMBRacing Racial Stress and Trauma: Preliminary Feasibility and Coping Responses of a Racial Socialization Intervention · Riana Elyse Anderson · 2017 · 133 citations · Cited by this paper
  18. A psychoeducational sleep health intervention for children with acute lymphoblastic leukemia during maintenance therapy: a proof-of-concept pilot study · 2025 · Related
  19. Validation of a Parent-Adolescent Communication Scale for Use in STD/HIV Prevention Interventions · Jessica McDermott Sales · 2006 · 99 citations · Cited by this paper
  20. Neighborhood opportunity and child health: links to health behaviors and indicators in middle childhood · 2026 · Related
  21. Reliability and validity of a self-efficacy instrument specific to sickle cell disease · Robert Edwards · 2000 · 95 citations · Cited by this paper
  22. Reliability and validity of PROMIS measures administered by telephone interview in a longitudinal localized prostate cancer study · Caroleen Quach · 2016 · 94 citations · Cited by this paper
  23. The efficacy of a pilot family psychoeducational intervention for pediatric sickle cell disease (SCD). · Nadine J. Kaslow · 2000 · 92 citations · Cited by this paper
  24. The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study · Shawn M. Bediako · 2014 · 82 citations · Cited by this paper
  25. Parent–Adolescent Communication Influences on Anxious and Depressive Symptoms in Early Adolescence · Micah Ioffe · 2020 · 80 citations · Cited by this paper
  26. Parent–adolescent communication and diabetes: an integrative review · Carol J. Dashiff · 2008 · 72 citations · Cited by this paper
  27. A systematic review of the association between parent‐child communication and adolescent mental health · Holger Zapf · 2023 · 66 citations · Cited by this paper
  28. Transitioning Adolescents and Young Adults With Sickle Cell Disease From Pediatric to Adult Health Care · Natalie B. Stollon · 2015 · 65 citations · Cited by this paper
  29. Topical Review: Integrating Findings on Direct Observation of Family Communication in Studies Comparing Pediatric Chronic Illness and Typically Developing Samples · Lexa K. Murphy · 2016 · 57 citations · Cited by this paper
  30. A Biopsychosocial Model for the Management of Patients With Sickle-Cell Disease Transitioning to Adult Medical Care · Lori E. Crosby · 2015 · 55 citations · Cited by this paper
  31. The Longitudinal Influence of Self‐Efficacy, Communication, and Parenting on Spontaneous Adolescent Disclosure · Josephine Paparo · 2014 · 40 citations · Cited by this paper
  32. What Mom and Dad Don’t Know CAN Hurt You: Adolescent Disclosure to and Secrecy From Parents About Type 1 Diabetes · Peter G. Osborn · 2012 · 39 citations · Cited by this paper
  33. Challenges in Shifting Management Responsibility From Parents to Adolescents With Sickle Cell Disease · Mariam Kayle · 2016 · 34 citations · Cited by this paper
  34. Effects of Experienced Discrimination in Pediatric Sickle Cell Disease: Caregiver and Provider Perspectives · Ariel O. Blakey · 2022 · 29 citations · Cited by this paper
  35. “Let's talk about it” The role of parental communication in adolescents' motivation to adhere to treatment recommendations for type 1 diabetes · Eveline R. Goethals · 2019 · 25 citations · Cited by this paper
  36. Decision-Making Involvement, Self-Efficacy, and Transition Readiness in Youth With Sickle Cell Disease · Maureen Varty · 2021 · 23 citations · Cited by this paper
  37. An Updated Equitable Model of Readiness for Transition to Adult Care · Kemar V. Prussien · 2024 · 22 citations · Cited by this paper
  38. A preliminary investigation of the psychometric properties of PROMIS® scales in emerging adults with sickle cell disease. · Aimee K. Hildenbrand · 2019 · 20 citations · Cited by this paper
  39. Exploring Family Communication About Sickle Cell Disease in Adolescence · Joyce Carolyn Graff · 2012 · 16 citations · Cited by this paper

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