Research map: Trends in patient and public involvement in health research 2000–2024

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Papers in this map

  1. Mapping the impact of patient and public involvement on health and social care research: a systematic review · Jo Brett · 2012 · 1728 citations · Cited by this paper
  2. Patient partnership in primary health care systems of the future: a structured priority setting exercise · 2026 · Related
  3. A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities · Jo Brett · 2014 · 907 citations · Cited by this paper
  4. Embedding the public voice in clinical trials: developing public-informed training for patient data research · 2026 · Related
  5. How does integrated knowledge translation (IKT) compare to other collaborative research approaches to generating and translating knowledge? Learning from experts in the field · Tram Nguyen · 2020 · 311 citations · Cited by this paper
  6. A critical reflective analysis of patient and public involvement in a programme of heart failure with preserved ejection fraction research · 2026 · Related
  7. Methods and impact of engagement in research, from theory to practice and back again: early findings from the Patient-Centered Outcomes Research Institute · Laura Pence Forsythe · 2017 · 227 citations · Cited by this paper
  8. Triangulating patient and public involvement in clinical research: a cross-cohort qualitative study · 2026 · Related
  9. ‘Talking the talk or walking the walk?’ A bibliometric review of the literature on public involvement in health research published between 1995 and 2009 · Jonathan D. Boote · 2012 · 225 citations · Cited by this paper
  10. Opportunities and challenges in patient-led research in India · 2026 · Related
  11. Reviewing progress in public involvement in NIHR research: developing and implementing a new vision for the future · Sophie H. Staniszewska · 2018 · 225 citations · Cited by this paper
  12. Embedding community engagement in tuberculosis (TB) research: evidence from urban Bangladesh · 2026 · Related
  13. The prevalence of patient engagement in published trials: a systematic review · Dean A. Fergusson · 2018 · 209 citations · Cited by this paper
  14. What added value does Patient and Public Involvement (PPI) in oncology research bring to cancer patients and what are the challenges in realizing it? A mixed-methods cross-sectional study in four PPI groups in Flanders (Belgium) · 2026 · Related
  15. Frequency of reporting on patient and public involvement (PPI) in research studies published in a general medical journal: a descriptive study · Amy I Price · 2018 · 172 citations · Cited by this paper
  16. Examining the strategic utilization of Community-Academic Partnerships as a research engagement method in clinical and public health research within urban settings: a qualitative analysis · 2026 · Related
  17. Engaging children and families in pediatric Health Research: a scoping review · Rachel Flynn · 2019 · 105 citations · Cited by this paper
  18. Community engagement in the creation of a novel dietary intervention for high school athletes: methods to include teen athletes and coaches in feasible ways · 2026 · Related
  19. How common is patient and public involvement (PPI)? Cross-sectional analysis of frequency of PPI reporting in health research papers and associations with methods, funding sources and other factors · Iain Lang · 2022 · 105 citations · Cited by this paper
  20. Partnerships and practices: a scoping review of engaging older adults living with frailty in the research process · 2026 · Related
  21. An analysis of reporting practices in the top 100 cited health and medicine-related bibliometric studies from 2019 to 2021 based on a proposed guidelines · Malcolm Koo · 2023 · 64 citations · Cited by this paper
  22. Promoting Activity, Independence, and Stability in Early Dementia and mild cognitive impairment (PrAISED): randomised controlled trial · Rowan Harwood · 2023 · 50 citations · Cited by this paper
  23. A Quantifiable Alternative to Double Data Entry · Dennis W. King · 2000 · 49 citations · Cited by this paper
  24. Patient and Family Representation in Randomized Clinical Trials Published in 3 Medical and Surgical Journals · Nissim Benizri · 2022 · 46 citations · Cited by this paper
  25. Positive Impacts of Adolescent Involvement in Health Research: An Umbrella Review · Azza Warraitch · 2024 · 44 citations · Cited by this paper
  26. The Impact of Patient and Family Engagement in Child Health Research: A Scoping Review · Shelley M. Vanderhout · 2022 · 43 citations · Cited by this paper
  27. Pediatric patient engagement in clinical care, research and intervention development: a scoping review · Lorynn Teela · 2023 · 36 citations · Cited by this paper
  28. Patient and Public Involvement Within Orthopaedic Research · Dean Owyang · 2021 · 32 citations · Cited by this paper
  29. Evolution of reported patient and public involvement over time in randomised controlled trials in major medical journals and in their protocols: meta-epidemiological evaluation · Alice Vanneste · 2025 · 28 citations · Cited by this paper
  30. Partnering with patients in clinical trials of pain treatments: a narrative review · Katherine J. Holzer · 2022 · 23 citations · Cited by this paper
  31. Patient and public involvement is suboptimal in randomized controlled trials addressing a chronic condition · Mathilde Husson · 2023 · 19 citations · Cited by this paper
  32. Reporting of PPI and the MCID in phase III/IV randomised controlled trials—a systematic review · Joseph Brennan · 2023 · 16 citations · Cited by this paper
  33. Public involvement in UK health and care research 1995–2020: reflections from a witness seminar · Marisha E. Palm · 2024 · 15 citations · Cited by this paper
  34. A Systematic Review of Patient and Public Involvement (PPI) in Bariatric Research Trials: The Need for More Work · Aya Musbahi · 2022 · 13 citations · Cited by this paper
  35. Training and capacity development in patient-oriented research: Ontario SPOR SUPPORT Unit (OSSU) initiatives · Colin Macarthur · 2023 · 12 citations · Cited by this paper
  36. Youth patient and public involvement in health research in the Netherlands: experiences from a multi-stakeholder interview study · Femke Hilverda · 2025 · 4 citations · Cited by this paper
  37. Research quality and dissemination of paediatric randomised controlled trials with and without patient and family engagement: systematic review · Cornelia M. Borkhoff · 2025 · 3 citations · Cited by this paper
  38. Prevalence of patient and public involvement in child health randomized controlled trials and impact on research quality, loss to follow-up, and dissemination · Sadia Akbar · 2025 · 2 citations · Cited by this paper

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