Research map: Beyond seizures in Dravet and Lennox–Gastaut syndromes − An Italian Expert Consensus on Non-Seizure issues and the role of fenfluramine

Back to the article

Papers in this map

  1. Use of Delphi in health sciences research: A narrative review · Zhida Shang · 2023 · 673 citations · Cited by this paper
  2. Socioeconomic status and time to epilepsy surgery in Australia: A retrospective tertiary centre cohort study · 2026 · Related
  3. How Delphi studies in the health sciences find consensus: a scoping review · Julia Schifano · 2025 · 154 citations · Cited by this paper
  4. Living with Dravet syndrome: quality of life and caregiver burden among family caregivers in Europe. Results from the QoL4DRAVET study · 2026 · Related
  5. The neurologist's role in supporting transition to adult health care · Lawrence W. Brown · 2016 · 116 citations · Cited by this paper
  6. Opposing associations of default mode network and subcortical network efficiency with IQ in children with drug-resistant epilepsy · 2026 · Related
  7. Fenfluramine: a plethora of mechanisms? · Jo Sourbron · 2023 · 66 citations · Cited by this paper
  8. Carrying the weight in silence: lived realities of epilepsy caregivers in Shai Osudoku and Ningo Prampram · 2026 · Related
  9. Improved everyday executive functioning following profound reduction in seizure frequency with fenfluramine: Analysis from a phase 3 long-term extension study in children/young adults with Dravet syndrome · Kim I. Bishop · 2021 · 61 citations · Cited by this paper
  10. When stigma hits home: A mixed methods study of affiliate stigma among epilepsy care partners · 2026 · Related
  11. An Emerging Role for Sigma-1 Receptors in the Treatment of Developmental and Epileptic Encephalopathies · Parthena Martin · 2021 · 55 citations · Cited by this paper
  12. From recurrence risk to seizure temporal phenotyping: the next step for wake-onset EEG in epilepsy with generalized tonic-clonic seizures alone · 2026 · Related
  13. Fenfluramine provides clinically meaningful reduction in frequency of drop seizures in patients with Lennox–Gastaut syndrome: Interim analysis of an open‐label extension study · Kelly G. Knupp · 2022 · 53 citations · Cited by this paper
  14. Use of medium-chain triglycerides in paediatric patients with drug-resistant epilepsy without ketogenic therapy · 2026 · Related
  15. The role of new medical treatments for the management of developmental and epileptic encephalopathies: Novel concepts and results · Cecilie Johannessen Landmark · 2021 · 49 citations · Cited by this paper
  16. Associations of self-esteem in people with epilepsy · 2026 · Related
  17. Caregiver-reported outcomes with real-world use of cannabidiol in Lennox-Gastaut syndrome and Dravet syndrome from the BECOME survey · Anne T. Berg · 2023 · 39 citations · Cited by this paper
  18. Validation of the Spanish version of the Epilepsy Anxiety Survey Instrument (EASI) and its brief version (brEASI) in Colombian patients with drug-resistant epilepsy · 2026 · Related
  19. Fenfluramine treatment for dravet syndrome: Real-world benefits on quality of life from the caregiver perspective · Mark P. Jensen · 2022 · 29 citations · Cited by this paper
  20. Fenfluramine treatment for Dravet syndrome: Caregiver- and clinician-reported benefits on the quality of life of patients, caregivers, and families living in Germany, Spain, Italy, and the United Kingdom · Mark P. Jensen · 2023 · 21 citations · Cited by this paper
  21. Vagus nerve stimulation in Lennox–Gastaut syndrome: Twenty‐four‐month data and experience from the CORE ‐ VNS study · Paul D. Lyons · 2025 · 17 citations · Cited by this paper
  22. Comorbidities in Dravet Syndrome and Lennox–Gastaut Syndrome · Francesca Marchese · 2021 · 15 citations · Cited by this paper
  23. Effects of vagus nerve stimulation on cognitive function in patients with epilepsy: a systematic review and meta-analysis · Yurou Kong · 2024 · 12 citations · Cited by this paper
  24. Expert-Agreed Practical Recommendations on the Use of Fenfluramine in Developmental and Epileptic Encephalopathies Based on Clinical Experience and Literature Review · Vicente Villanueva · 2025 · 12 citations · Cited by this paper
  25. Long‐term outcomes and adaptive behavior in adult patients with Lennox–Gastaut syndrome · Emanuele Cerulli Irelli · 2024 · 11 citations · Cited by this paper
  26. Fenfluramine Treatment Is Associated With Improvement in Everyday Executive Function in Adults With Lennox-Gastaut Syndrome: Post-Hoc Analysis of Dose Effects From a Phase 3 Trial Rationale (P11-1.001) · Kim Bishop · 2023 · 9 citations · Cited by this paper
  27. Caregiver-reported non-seizure and seizure outcomes with cannabidiol and clobazam in patients aged ≥2 years with Lennox-Gastaut syndrome or Dravet syndrome: A subgroup analysis of the BECOME survey · Michael Scott Perry · 2025 · 6 citations · Cited by this paper
  28. Improving the transition from pediatric to adult epilepsy care: An expert opinion · Flavio S. Villani · 2025 · 4 citations · Cited by this paper
  29. Over twenty-five years of ketogenic diet therapy: Supporting children and adults with drug-resistant epilepsy using nutritionally complete ketogenic formulations: A scoping review · Jennifer H Carroll · 2025 · 4 citations · Cited by this paper
  30. New and emerging pharmacotherapeutic options for the treatment of lennox-gastaut syndrome: moving forward in 2025 · Giovanni Battista Dell’Isola · 2025 · 2 citations · Cited by this paper
  31. Organizational and behavioral models in the management of patients with developmental and epileptic encephalopathy, Lennox-Gastaut syndrome and Dravet syndrome in Italy: a focus on the transition from pediatric to adult care · Carlo Di Bonaventura · 2025 · 2 citations · Cited by this paper
  32. Beyond seizure control: Functional and caregiver-reported outcomes of long-term fenfluramine treatment in Dravet syndrome · Valentina Massaroni · 2026 · 2 citations · Cited by this paper
  33. Beyond seizures: A multidimensional approach to non-seizure issues in Lennox-Gastaut syndrome. Insights from Italian experts. · Giancarlo Di Gennaro · 2025 · 1 citation · Cited by this paper

Source: OpenAlex (CC0)