Research map: Patient‐Reported Outcome Measures and Clinical Performance in Hemophilia: Implications for Person‐Centered Care

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Papers in this map

  1. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement: Guidelines for Reporting Observational Studies · Erik B von Elm · 2007 · 22379 citations · Cited by this paper
  2. Real‐World Outcomes of Prophylaxis With rIX‐FP in Germany: A Prospective, Non‐Interventional Study in Haemophilia B · 2026 · Related
  3. Quality criteria were proposed for measurement properties of health status questionnaires · Caroline Barbara Terwee · 2006 · 11056 citations · Cited by this paper
  4. Gait Pattern at Different Speeds in Persons With Haemophilia · 2026 · Related
  5. The Proof and Measurement of Association between Two Things · C. Spearman · 1904 · 8013 citations · Cited by this paper
  6. Accuracy of Factor VIII Assays for Measuring Damoctocog Alfa Pegol: A Comparative Analysis · 2026 · Related
  7. WFH Guidelines for the Management of Hemophilia, 3rd edition · Alok Srivastava · 2020 · 2035 citations · Cited by this paper
  8. Real‐World Effectiveness and Safety of Concizumab Prophylaxis in Hemophilia: Results From a National French Cohort · 2026 · Related
  9. Patient‐relevant health outcomes for hemophilia care: Development of an international standard outcomes set · Erna C. van Balen · 2021 · 47 citations · Cited by this paper
  10. Seventh Åland Island Meeting on von Willebrand Disease · 2026 · Related
  11. Measuring activities and participation in persons with haemophilia: A systematic review of commonly used instruments · Merel A. Timmer · 2017 · 42 citations · Cited by this paper
  12. The Analysis of the FIX‐inhibitor Risks Associated With the F9 Genotype in Patients With Haemophilia B Exposes the Involvement of Nonsense Mediated‐decay: Argentinean and International Series · 2026 · Related
  13. Outcome measures in Haemophilia: Beyond ABR (Annualized Bleeding Rate) · Marilyn J. Manco‐Johnson · 2021 · 42 citations · Cited by this paper
  14. Predictors and Clinical Impact of Time to Diagnosis in Acquired Haemophilia A: An 11‐Year Retrospective Cohort Study · 2026 · Related
  15. Recent advances in developing specific therapies for haemophilia · Gavin Ling · 2018 · 38 citations · Cited by this paper
  16. Successful Treatment of Heavy Menstrual Bleeding in a Woman With Mild Haemophilia A Using Efanesoctocog Alfa · 2026 · Related
  17. Outcomes and outcome measures · Giancarlo Castaman · 2024 · 12 citations · Cited by this paper
  18. Weight‐Bearing Lunge Test in Young Patients With Haemophilia and Limited Joint Damage: Reliability and Functional Associations for Ankle Assessment · 2026 · Related
  19. Systematic Literature Review of Outcomes Associated With Adherence to Haemophilia Drug Therapy · Cynthia Khanji · 2025 · 9 citations · Cited by this paper
  20. Real‐World Unmet Treatment Needs for Patients With Haemophilia: Results From the Global Adelphi Disease Specific Programme Database · 2026 · Related
  21. Correlations between patient-reported outcomes and self-reported characteristics in adults with hemophilia B and caregivers of children with hemophilia B: analysis of the B-HERO-S study · Tyler W. Buckner · 2019 · 8 citations · Cited by this paper
  22. The value‐based healthcare approach to haemophilia: Development of outcome measures for the evaluation of care of people with haemophilia · Paolo Angelo Cortesi · 2024 · 8 citations · Cited by this paper
  23. Patient-reported outcome measures in adults with hemophilia: A scoping review · Yingrong Bai · 2025 · 3 citations · Cited by this paper

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