Research map: Parental perspectives on neurodevelopmental risk communication and care coordination in congenital heart disease: a nationwide survey in France

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Papers in this map

  1. Global birth prevalence of congenital heart defects 1970–2017: updated systematic review and meta-analysis of 260 studies · Yingjuan Liu · 2019 · 1467 citations · Cited by this paper
  2. Clinical characteristics and predictors of severe pertussis in hospitalized children after the COVID-19 period in Türkiye: a multicenter study · 2026 · Related
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  7. Neurodevelopmental Outcomes for Individuals With Congenital Heart Disease: Updates in Neuroprotection, Risk-Stratification, Evaluation, and Management: A Scientific Statement From the American Heart Association · Erica Sood · 2024 · 248 citations · Cited by this paper
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  9. Neurodevelopmental evaluation strategies for children with congenital heart disease aged birth through 5 years: recommendations from the cardiac neurodevelopmental outcome collaborative · Janice Ware · 2020 · 120 citations · Cited by this paper
  10. High versus standard dose caffeine in prevention of apnea of prematurity: an assessor-blinded randomized controlled trial (HI-CAF trial) · 2026 · Related
  11. Parental stress and resilience in CHD: a new frontier for health disparities research · Amy Jo Lisanti · 2018 · 81 citations · Cited by this paper
  12. The relationship of spiritual well-being and social support perceptions on psychological resilience among parents of children with special needs · 2026 · Related
  13. Academic Outcomes in Children With Congenital Heart Defects · Matthew E. Oster · 2017 · 67 citations · Cited by this paper
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  15. Population-based study of cognitive outcomes in congenital heart defects · Johanna Calderon · 2017 · 37 citations · Cited by this paper
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  17. Implementing neurodevelopmental follow‐up care for children with congenital heart disease: A scoping review with evidence mapping · Bridget Abell · 2023 · 29 citations · Cited by this paper
  18. Psychological and lifestyle predictors of paediatric sleep disturbances: a cross-sectional study · 2026 · Related
  19. Parents' experiences of receiving their child's diagnosis of congenital heart disease: A systematic review and meta‐synthesis of the qualitative literature · Shannon Dandy · 2023 · 28 citations · Cited by this paper
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  21. Parental experience of the neuromotor development of children with congenital heart disease: an exploratory qualitative study · Elena Mitteregger · 2021 · 23 citations · Cited by this paper
  22. Prioritizing family-centered developmental care: insights from parents of children with critical congenital heart disease: a qualitative study · Maaike C. A. Sprong · 2024 · 19 citations · Cited by this paper
  23. Educational outcomes among children with congenital heart disease compared to peers: a Scotland-wide record-linkage study of 715,850 schoolchildren · Michael Fleming · 2024 · 6 citations · Cited by this paper
  24. Exploring relationships between parental stress, coping, and psychological outcomes for parents of infants with CHD · Tríona Casey · 2024 · 4 citations · Cited by this paper
  25. Prenatal counseling for heart disease: Perception of understanding and communication gaps · Katherine J. DeWeert · 2025 · 2 citations · Cited by this paper
  26. Never enough: bridging the gap between evidence and facts in the neurodevelopmental assessment of congenital heart disease children · Olivier Cadeau · 2025 · 2 citations · Cited by this paper

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