Research map: Participatory development of patient-targeted guideline material in palliative care: A qualitative evaluation

Back to the article

Papers in this map

  1. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups · Allison Tong · 2007 · 44097 citations · Cited by this paper
  2. Knowledge of advance care planning and advance directives among US adults: Implications for health policy and practice · 2026 · Related
  3. Patient and service user engagement in research: a systematic review and synthesized framework · Nathan D. Shippee · 2013 · 672 citations · Cited by this paper
  4. Institutional challenges in responding to Austria’s Dying Decree Law: An evaluation from the perspectives of nursing and medical directors · 2026 · Related
  5. Impact of patient involvement on clinical practice guideline development: a parallel group study · Melissa J. Armstrong · 2018 · 217 citations · Cited by this paper
  6. ‘I dream of the airplane, but I cannot board it’: Exploring end-of-life aspirations with people who have lived experiences of homelessness · 2026 · Related
  7. Patient and Public Involvement in Clinical Practice Guidelines · France Légaré · 2011 · 167 citations · Cited by this paper
  8. Challenges, care gaps, and coping mechanisms in patients with advanced cancer and their caregivers following palliative gastrointestinal surgery · 2026 · Related
  9. Revised European Association for Palliative Care (EAPC) recommended framework on palliative sedation: An international Delphi study · Séverine Marie Surges · 2024 · 111 citations · Cited by this paper
  10. Healthcare provider’s perceptions of family values when making end-of-life care decisions for their children: developing and implementing a survey tool · 2026 · Related
  11. Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review · Eleni Chambers · 2019 · 106 citations · Cited by this paper
  12. Lived experiences of well-intended but hurtful cancer communication: Insights for death literacy · 2026 · Related
  13. Patient involvement in guidelines is poor five years after institute of medicine standards: review of guideline methodologies · Melissa J. Armstrong · 2017 · 90 citations · Cited by this paper
  14. Positioning palliative oncology in health care in Caribbean and Sub-Saharan African countries: Leveraging social and economic opportunities · 2026 · Related
  15. Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation · Halle Johnson · 2020 · 65 citations · Cited by this paper
  16. Towards quality indicators in palliative care education: An umbrella review · 2026 · Related
  17. Participatory Research: Why and How to Involve People in Research · Dirk Schubotz · 2020 · 64 citations · Cited by this paper
  18. Awareness and knowledge of palliative care in Tripoli, Lebanon: A cross-sectional study in a disadvantaged population · 2026 · Related
  19. A conceptual framework for patient-directed knowledge tools to support patient-centred care: Results from an evidence-informed consensus meeting · Dunja H. H. Dreesens · 2019 · 38 citations · Cited by this paper
  20. What factors predict severity of palliative care symptoms and concerns in COPD in South Africa? A cross-sectional study · 2026 · Related
  21. Monitoring and evaluation of patient involvement in clinical practice guideline development: lessons from the Multidisciplinary Guideline for Employment and Severe Mental Illness, the Netherlands · Alida Joanna van der Ham · 2015 · 36 citations · Cited by this paper
  22. Action research in palliative care: Defining an evaluation methodology · Katherine A. Froggatt · 2011 · 35 citations · Cited by this paper
  23. Participation and consultation engagement strategies have complementary roles: A case study of patient and public involvement in clinical practice guideline development · Melissa J. Armstrong · 2019 · 35 citations · Cited by this paper
  24. Intentional Sedation as a Means to Ease Suffering: A Systematically Constructed Terminology for Sedation in Palliative Care · Alexander Kremling · 2022 · 31 citations · Cited by this paper
  25. Expert-approved best practice recommendations on the use of sedative drugs and intentional sedation in specialist palliative care (SedPall) · Christoph Ostgathe · 2023 · 19 citations · Cited by this paper
  26. Unzureichende Patientenbeteiligung an der Leitlinienentwicklung in Deutschland – eine Analyse der von der AWMF verbreiteten ärztlichen Empfehlungen · Günter Ollenschläger · 2018 · 14 citations · Cited by this paper
  27. Insights on conducting digital patient and public involvement in dementia research during the COVID-19 pandemic: supporting the development of an “E-nabling digital co-production” framework · Mauricio Molinari Ulate · 2022 · 14 citations · Cited by this paper
  28. Negotiating pace, focus and identities: Patient/public involvement/engagement in a palliative care study · Liz Forbat · 2024 · 11 citations · Cited by this paper
  29. Engaging Cancer Patients in Clinical Practice Guideline Development: A Pilot Study · Melissa C. Brouwers · 2018 · 5 citations · Cited by this paper
  30. Untitled · Cited by this paper

Source: OpenAlex (CC0)