Exploring the psychosocial status and lived experiences of haemophilia carriers: a comprehensive mixed methods study

The Journal of Haemophilia Practice · Published 2025-01-01 · DOI 10.2478/jhp-2025-0002

Authors being retrieved — see the publisher record. https://doi.org/10.2478/jhp-2025-0002

Abstract

PubPorta does not have an abstract for this article yet.

Read the article at the publisher →

Publication details

Year: 2025

Related articles

Processes and experiences of satellite haemophilia clinic set-ups in Uganda – a short report · The Journal of Haemophilia Practice · 2022 · Same journal
Focus on musculoskeletal health in women with bleeding disorders · The Journal of Haemophilia Practice · 2022 · Same journal
Use of extended half-life factor IX products in the surgical setting: case series from a UK haemophilia centre · The Journal of Haemophilia Practice · 2025 · Same journal
A multidisciplinary approach to optimising the virtual management of haemophilia: a roundtable meeting of UK experts · The Journal of Haemophilia Practice · 2023 · Same journal
Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir · The Journal of Haemophilia Practice · 2024 · Same journal
Results of a questionnaire for women with bleeding disorders at the Coagulation Unit, Karolinska University Hospital, Sweden · The Journal of Haemophilia Practice · 2025 · Same journal
Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study · The Journal of Haemophilia Practice · 2024 · Same journal
Severe haemophilia A with haemarthrosis improved on emicizumab: A case report · The Journal of Haemophilia Practice · 2025 · Same journal
Patient agency: key questions and challenges – A report from the 1st workshop of the EHC Think Tank Workstream on Patient Agency · The Journal of Haemophilia Practice · 2022 · Same journal
Recognising the importance of the research nurse and study coordinators in enhancing retention of people with haemophilia in clinical trials · The Journal of Haemophilia Practice · 2023 · Same journal