Regulatory Guidance for the Return of Raw Genomic Data to Research Participants: A Qualitative Interview Study
Journal of Law, Medicine and Ethics · Published 2026-06-04 · DOI 10.1017/jme.2026.10267
Free full text
Authors (10)
Jane Louise Nielsen, Claire E. Wakefield, Rebekah McWhirter, Carolyn Johnston, Margaret Otlowski, Vanessa Tyrrell, Mark J. Cowley, Katherine M. Tucker, Ruth Lyons, Anthony J. Gill
Abstract
PubPorta does not have an abstract for this article yet.
Read the article at the publisher →
Publication details
- Year
- 2026
Citation
Nielsen, J., Wakefield, C., McWhirter, R., et al. (2026). Regulatory Guidance for the Return of Raw Genomic Data to Research Participants: A Qualitative Interview Study. Journal of Law, Medicine and Ethics. https://doi.org/10.1017/jme.2026.10267
Related articles
- JME volume 54 issue 2 Cover and Front matter · Journal of Law, Medicine and Ethics · 2026 · Same journal
- Intellectual Disability and Supported Decision-Making in Clinical Research: Anticipating Ethical Challenges · Journal of Law, Medicine and Ethics · 2026 · Same journal
- Advancing Commitment to Health Equity Through Community-Based Legal Epidemiology: A Case Study of Local Policy Reform · Journal of Law, Medicine and Ethics · 2026 · Same journal
- JME volume 54 issue S1 Cover and Back matter · Journal of Law, Medicine and Ethics · 2026 · Same journal
- US Global Health Leadership: The First Year of the Second Trump Administration · Journal of Law, Medicine and Ethics · 2026 · Same journal
- Beyond Individual Privacy: A Layered Diagnostic Model for Analyzing Genetic Data Governance · Journal of Law, Medicine and Ethics · 2026 · Same journal
- Insurrection Powers and the Public’s Health · Journal of Law, Medicine and Ethics · 2026 · Same journal
- Best Practices for the Exchange and Protection of Tribal Public Health Data: How Federal, State, and Local Governments Can Honor Tribal Data Sovereignty · Journal of Law, Medicine and Ethics · 2026 · Same journal
- Probing the Prevalence of Pharmaceutical Corruption · Journal of Law, Medicine and Ethics · 2026 · Same journal
- The Legal Landscape for Supported Decision-Making in the United States and its Application to Clinical Research · Journal of Law, Medicine and Ethics · 2026 · Same journal